When he was 18months old, I took him to the local physician to find out why he was having problems peeing. He went from streaming, to dripping, to nothing at all. Doctor tells me, after getting blood work done, that he has mono. (still dont know what that has to do with his peeing problem) She gives me some meds and gives my son a shot. We go back 3 days later for a follow up and she asks how hes doing. I said Not any better. Hes worse. Few min later she says, so hes better? (freakin kidding me!!) Then she looks at his blood work again and says, he has strep and gives me another script. The next day he was in pain, not moving, not peeing.. Nothing. I picked up my mom and rushed to the Childrens hosp because I had had enough with the doctors in this area. Get there and faught with the intern about my sons condition. Finally Urology came in and Cath'd him. 16oz! They sent us for a CT scan and sonogram. The sonogram showed a large mass in his bladder that had spread into his prostate. They came in and told us the news, scheduled a emergency biopsy, telling us we are going to have a very long night.
It was a VERY long night in the ER. I was up 36hrs straight before I finally went home. I couldn't stay at the hospital the first 2 nights because he was in ICU. Then he spent another 3-4 weeks on the childrens oncology/blood disorders floor with other children fighting the illness.
His Cancer is called Rhabdomyosarcoma. (<~~thread says I spelled that wrong.. its not. I know that word by heart. lol Pronounced - Rab doe myo sarcoma) Very rare for a child his age to get it where he did. We had a year of chemo which required us to be in the hospital for a year on and off. Pretty much 2-3 weeks in, we would come home and next day or 2-3 days later, back in because he would get a fever/infection. Then 8 weeks of Radiation some where in the middle of the year chemo. His teeth are messed up from a combination of antibiotics, chemo, and radiation. I dont wish this on any child. Lucky me gets the child that refuses to sleep because we are not at home. EVERY NIGHT we had to push IV Benedryl thru his lines for him to sleep. he always wanted to play or walk up and down the halls. All I wanted to do was SLEEP! Many many nights I ended sleeping with him all balled up in his hospital crib with him. Not comfy at all. Nurses found it hysterical. Friends would come in and take pics.. Big joke for awhile. Later on we moved to the toddler bed, a little bit bigger bed, but still had rails on both sides. More pics taken..haha haha.. hee hee hee. Of course I always looked my best.. NOT! A few nights I woke up covered in a mixture of blood and saline because he would chew off the rubber part where they push his meds thru his line. First time was scary. Never would of known my kid was getting chemo except for the hair loss and pale skin.
After Blood transfusions he would be wired so they would try not to do those late at night but sometimes they couldn't help it. Emergency's happen.. a lot.
He hasn't changed. Hes still Hyper and refuses to sleep, even now as i type this at midnight. Wont go to bed until I do. Frustrating at times. He is so full of himself!
He will be 5 New Years Eve. Child of surpises. He even was born early (2 1/2weeks).. had to be different and come out for new years eve excitement. Doesn't want to miss a thing! haha
id post apic but Im currently using an old PC and all my files are on a disk somewhere. I have a video of him in the hosp. If I can find the link, I will post it. Its him to the T. Clown.
